Monthly Archives: January 2018

7 “mistakes” you’re making as a caregiver for someone with Alzheimer’s and what to do about it.

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Helping hands, care for the elderly concept

If you’re like most caregivers you are tired, stressed, and some days just can’t wait to crawl into bed. Are you taking care of yourself? Are you getting enough rest? Do you have the support you need? Are you listening carefully to the person you lovingly care for? Here’s a quick check-list for assessing how well you are caring for yourself and your loved one.

  1. Are you eating a poor breakfast or skipping breakfast? It is so important to begin the day with a nourishing meal. This is true for everyone, but especially important for caregivers. It’s recommended that we eat within one hour after waking to stabilize our blood sugar—which has dropped during sleep—so that your mood stays even and you can perform at your best.  If not, you’ll be more apt to reach for a bagel or doughnut or another cup of coffee. After loading up on carbs and empty calories, it’s typical to feel hungry again within a couple of hours. And every time our blood sugar crashes, it’s a signal to the body to store calories. The same goes for a hungry body. If you don’t eat breakfast, your blood sugar will be low, and this too is a signal to the body to store calories, which adds fat around your middle. And, of course, the same applies to the person you care for.

Breakfasts of Champions

Instead of eating a bowl of corn flakes with a banana and low-fat milk, have a 2-egg omelet, slice of whole grain toast, a cup of fresh fruit and a cup of steamed greens such as kale. Then notice the difference in how you feel. You’ll have more stamina, less anxiety and depression, and will able to get through the whole day more easily.

Other ideas

  • Whole-grain mini-quiche with 1/2 cup berries
  • Oatmeal with prunes or raisins, walnuts or almonds, and cinnamon, whole milk
  • Multigrain hot cereal, Greek yoghurt and fresh fruit, almonds
  • Eggs with beans, salsa, and a side of greens
  • Bagel with hummus, tomato and goat cheese
  • Smoothie with greens, fruit, protein and flax

2. Do you say “Remember when . . . .or, I told you already . . .”

People with dementia typically do not remember what they said a few minutes ago. If your loved one repeats the same question over and over again, try not to get annoyed. Instead of reminding the person that they forgot what you told them a second ago rephrase it, breaking it down into a simple sentence . . . or completely change the subject.

If you reminisce about something instead of saying, “Remember when we were kids and we’d ride around the neighborhood on our bikes, etc.” tell the story: “You had a red bike and I had a blue bike and we loved to ride through the woods on the bike path, etc.”

If he or she asks about a spouse or parent who has passed away, change the subject to something like this: “Mom and Dad met in New York City at a dance, etc.” If the person keeps asking when he or she can go “home” ask the person to tell you about “home.” You might have to distract your loved one by taking a walk, listening to music, looking at pictures in a book or magazine. Saying “You are already home,” probably will not work.

3. Unusual irritability or anger can be the sign of a UTI or other physical ailment that requires attention. Acting out or acting differently than what is the person’s usual behavior can be a cry for help, especially if the person is non-verbal. Make an appointment to see a doctor to rule out anything suspicious.

4. How well are you sleeping? There are plenty of studies linking poor sleep to a host of physical and psychological ailments: poor immunity, elevated levels of cortisol and insulin, weight gain, diabetes, cardiovascular disease and even Alzheimer’s disease. And irritability, foggy thinking and anxiety, depression and low energy can directly impact your ability to care for another person, do household chores and get in the way of your interpersonal relationships. Good sleep hygiene is the first step to improving your sleep. Click here to read a list of things to try when you are stressed, your mind is on overload, or when you’ve just had too much stimulation and can’t fall asleep or stay asleep.

5. Are you and/or your loved one lonely? Caregiving can isolate us from our friends and family.  You may feel that your social network has disappeared or that your friends have “jumped ship.” This may also be true for the person you care for. Set up times for family and friends to visit or take your loved one on an outing. And don’t be afraid to ask your own friends for support. Find respite care and set up a lunch date with a friend. It’s vital to have social interaction for your mental, physical and emotional health.

6. Is there adequate lighting in the home where your loved one lives? People with dementia can become fearful because they don’t see things spatially the same way we do. Their sense of space is distorted and their vision gets skewed, not because there is something physically wrong with their eyes. But rather, the brain interprets what the eyes see, and when the brain doesn’t work right our perception gets distorted. Two things you can do to help are to put extra lights in dark areas of the living quarters and remove throw rugs in order to reduce falls.

7. Are you and your loved adequately hydrated? Drink at least 6-8 glasses of water each day to keep your body hydrated and to flush out toxins. The brain is 70% water when fully hydrated. When it is dehydrated, neurotransmission—which is heavily dependent on water—is impaired, resulting in poor memory, concentration and impaired abstract thinking. The same goes for your loved one. Memory is much improved when the brain is hydrated. Seniors often lose the signal that they are thirsty and dehydration can be a serious problem for the frail and elderly. If your loved one lives in a memory care home or nursing home, make sure water is provided throughout the day–not just that it is available but that it is offered.

Caregiving is probably the hardest thing you will ever do. You are doing the best that you can, but please remember to take care of yourself.

For more information on how you can reduce stress and boost your happiness and health, read Calmer Waters: The Caregiver’s Journey Through Alzheimer’s & Dementia.

 

How to prevent people with Alzheimer’s from wandering

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einsamer alter mann geht die Treppe hinauf

Wandering is a common symptom of Alzheimer’s disease. More than 60% of memory loss patients wander at some point during the course of their illness.  A man at the memory care facility where my husband lived used to scale a 10-foot wall. Luckily, staff personnel were able to find him before he was harmed. But that is not always the case.

A neighbor of mine had the tragic experience of having her husband take the car keys, drive off to another state, and disappear. The car was found and he was not.

Who is at risk? Anyone with Alzheimer’s or dementia and is mobile is at risk for wandering.

Also, individuals who:

  • Live in a memory care home and want to go home or are waiting for a loved one to pick them up.
  • Live at home yet repeatedly say, “I want to go home.”
  • Come home from a walk around the neighborhood or a drive later than usual.
  • Don’t remember how to get to a familiar location.
  • Are nervous, anxious or disoriented when out in public , i.e. restaurant, grocery store, etc.
  • Pace or repeatedly try to find things or familiar rooms in a house.
  • Ask the whereabouts of friends and family.
  • Seem busily occupied but in actuality don’t get anything done, such as moving dirt around without planting or watering, or shoveling snow but not clearing off the sidewalk or driveway.

Ways to prevent wandering

  • If you care for your loved one at home, put the car keys in a secure place where only able, designated drivers have access to them.
  • Hang bells on the doorknobs of exterior doors to alert you when a door is opened.
  • Install new locks on the doors and windows that your loved one cannot open.
  • Remove items from sight such as shoes, hats, gloves, umbrellas, etc. that your loved one might associate with going outside.
  • Put a black rug in front of the door. To some people with dementia, this looks like a hole, which they will not cross.
  • Put a large sign on the inside of the exit door that says, “Stop” or “Do Not Enter.”
  • Do not argue with your loved one if he or she insists on going outside. Instead, walk with him or her down the hall, or redirect their attention to an activity. Mentioning the word “ice cream” often works like magic.
  • Avoid going to crowded places such as shopping malls.

Make a plan

  • Keep a list of places where your loved one might wander such as a past job location, previous home, restaurant, library, etc.
  • Alert your neighbors to the situation at home, and make sure they phone you if they see him or her unaccompanied outside.
  • Be aware if the person is left or right-handed because wandering usually follows the direction of the dominant hand.
  • Put a close-up photo and medical information in an easy-to-find location to give to the police.
  • Search the immediate area that the person has wandered off to for no more than 15 minutes. Then call “911” to report to the police that a person with Alzheimer’s disease or dementia —also referred to as a “vulnerable adult”–is missing. A Missing Report should be filed. Then the police will begin to search for the person.
  • Many local police departments have a Project Lifesaver GPS bracelet or Safe Return® bracelet that can track an Alzheimer’s patient.
  • The Alzheimer’s Association offers MedicAlert® + Alzheimer’s Association Safe Return®, a 24-hour nationwide emergency response service for individuals with Alzheimer’s or a related dementia who wander or have a medical emergency.

How it works

  1. If an individual with Alzheimer’s or a related dementia wanders and becomes lost, caregivers can call the 24-hour emergency response line (1.800.625.3780) to report it.
  2. A community support network will be activated, including local Alzheimer Association chapters and law enforcement agencies, to help reunite the person who wandered with the caregiver or a family member. With this service, critical medical information will be provided to emergency responders when needed.
  3. If a citizen or emergency personnel finds the person with dementia, they can call the toll-free number listed on the person’s MedicAlert + Safe Return ID jewelry. MedicAlert + Safe Return will notify the listed contacts, making sure the person is returned home.

Most importantly, stay calm and don’t panic. 94% of people who wander are found within 1.5 miles of where they disappeared. But it is important to begin the search and rescue efforts immediately.

Remember this: Prevent the danger that has not come. Be prepared.

For more great information about how you can reduce stress, feel happier, more energetic, healthier, deal with issues of grief and depression, and ultimately experience inner peace, read Calmer Waters: The Caregiver’s Journey Through Alzheimer’s and Dementia.   Available on Amazon and at all bookstores that sell quality books.

BarbraCohn__